After a lot of thought and work into our project, I am proud to announce the release of www.ErasingLimits.com and The Tourette Syndrome documentary project, a collection of personal stories about Tourette Syndrome!
Website: www.ErasingLimits.com
Facebook: www.facebook.com/Erasing.Limits
What is our goal from The Tourette Syndrome Documentary Project?
Our goal from The Tourette Syndrome documentary project is to make a difference in how Tourette Syndrome and other "gifts" are viewed by society. The stories that make up this project are told from mothers, fathers, siblings, teens, and children all living with Tourette Syndrome themselves or living with someone close to them who is affected by Tourette Syndrome.
What is Erasing Limits?
Erasing Limits is a video database of empowering knowledge. Through EL, you can find high quality, informative, and inspirational videos about various disabilities, disorders, and challenges. All videos featured are videos that have been reviewed and are worth watching for anyone wanting more information, support, or encouragement in the video's respective area.
Another note about the Tourette Syndrome documentary project, this is a project that we plan to build on over time. If you sent in a video to participate in the project and you do not see your video up on the website, don't worry! The videos we have released today as part of the project are just the start and if you sent in a video for the project, I promise your video will be edited and put up as part of the project at a later date!
Also, if you wish to submit a video to participate in the growing and ongoing Tourette Syndrome documentary project, please send me a message through facebook or send me an e-mail at jspershing93@gmail.com.
Showing posts with label Documentary. Show all posts
Showing posts with label Documentary. Show all posts
Tuesday, May 28, 2013
Wednesday, May 15, 2013
Full TS Documentary from Last Year In One Video
Hey guys! I know many of you saw and/or participated in the first TS documentary that I produced last year. For those of you who missed it or if you just want to watch it again, I have compiled the whole 50 minute documentary together in one video with the help of vimeo! No more dealing with having to switch from part 1, to part 2, to part 3, etc. So I would highly suggest watching it or sharing it if you haven't already! The next TS documentary project is going to be even better than this one, but of course the first one is still a very good watch! It's called "Out of Our Control: The Chronicled Lives of Tourette's Syndrome". Just click on the link to view it :) https://vimeo.com/66215926
Monday, May 13, 2013
News about the Tourette's Syndrome Documentary Project and More
Good and major news everyone! Logan and I will be releasing the long awaited Tourette's Syndrome Documentary Project around the end of this month in honor of Tourette's Syndrome awareness month! Along with the documentary project, Logan and I will also be releasing our website that the documentary project will be featured on. Basically the website is going to be a video database where people can find video clips and full length documentaries that are about disabilities, disorders, and other life challenges. Not only will these videos be providing knowledge, but they will also be empowering and the source of great support. These videos will let people with all sorts of different challenges that they are NOT alone. Of course since Logan and I both have TS, Tourette's Syndrome will be a special focus of many sections of the website so there will be many video resources for those of you in this group! I hope you all are as excited as I am! I can't wait to get all of your feedback on this project that Logan and I have spent so much time and effort to create for you guys. More information to come later this month
Wednesday, November 7, 2012
Meet Johanna! Johanna's Bio for the Documentary!
Meet Johanna! She and many others who live with Tourette's Syndrome will be featured in our upcoming documentary!
"Hey, I'm Johanna! I'm 18 years old and live in Lititz, PA.
I've had TS for as long as I remember, but it was very mild until age 16. My tics range from neck tics, to full body convulsions, to screaming obscenities, to screaming fun words like MOM BIT ME!. I have to many tics to nam
"Hey, I'm Johanna! I'm 18 years old and live in Lititz, PA.
I've had TS for as long as I remember, but it was very mild until age 16. My tics range from neck tics, to full body convulsions, to screaming obscenities, to screaming fun words like MOM BIT ME!. I have to many tics to nam
e!
The hardest part about my TS is the severity. My tics are constant and sometimes I struggle to do simple tasks such as feed myself. TS comes in a wide-range of symptoms. Unfortunately mine is at the very severe end.
One of my favorite things to do is bowl. Most people don't know that when us with TS, no matter how bad, the tics can calm when focused. Did you know, there's a surgeon with severe TS? Yep! That's right! When he's performing surgery he doesn't tic at all!
I think people should know that Tourette's isn't a funny swearing disorder. Only 6-10% of people with TS display Coprolalia (which is a comorbid disorder which is associated with Tourette's). Tourette's is a movement disorder and uncontrollable vocalizations i.e. grunting or humming. My wish is that people understand we can't help it. We can't control it, and I promise you it bothers us more than it bothers you. At least you can walk away from it, we can't."
The hardest part about my TS is the severity. My tics are constant and sometimes I struggle to do simple tasks such as feed myself. TS comes in a wide-range of symptoms. Unfortunately mine is at the very severe end.
One of my favorite things to do is bowl. Most people don't know that when us with TS, no matter how bad, the tics can calm when focused. Did you know, there's a surgeon with severe TS? Yep! That's right! When he's performing surgery he doesn't tic at all!
I think people should know that Tourette's isn't a funny swearing disorder. Only 6-10% of people with TS display Coprolalia (which is a comorbid disorder which is associated with Tourette's). Tourette's is a movement disorder and uncontrollable vocalizations i.e. grunting or humming. My wish is that people understand we can't help it. We can't control it, and I promise you it bothers us more than it bothers you. At least you can walk away from it, we can't."
Meet Molly! Molly's Bio for the Documentary!
Meet Molly! She and many others who live with Tourette's Syndrome will be featured in our upcoming documentary.
"My name is Molly Barton, I'm 18 and I live near Grand Rapids, MN.
I have had TS since I was 7. Some of my tics are tensing up my muscles in my arms, legs, and back, jerking my head, shaking my head, jerking my arms out to the side, a humming noise, a sniffing noise, blinking my eyes
"My name is Molly Barton, I'm 18 and I live near Grand Rapids, MN.
I have had TS since I was 7. Some of my tics are tensing up my muscles in my arms, legs, and back, jerking my head, shaking my head, jerking my arms out to the side, a humming noise, a sniffing noise, blinking my eyes
, rolling my eyes. facial grimaces.
The hardest part about having TS is either having to deal with tics when they get really bad and out of control, or dealing with ignorant people. Dealing with the aftermath of being bullied and ostracized my whole life.
I guess I'd say my biggest strengths are my determination and compassion that have been brought on by my struggles with TS. I love to read, write, sing, play guitar, and bowl.
I think other people should know how hard it really is to live with TS. Some people think it's not that difficult, but in reality, it is. TS can bring some good things, but it can also bring alot of bad things, too. We struggle with things that most people don't have to worry about, and it can be heartbreaking to have to deal with. The pain never really goes away, no matter how good you can become at hiding it and making clever excuses. But with that comes alot of strength, determination, and compassion. Always give someone with TS a chance. They just might surprise you."
The hardest part about having TS is either having to deal with tics when they get really bad and out of control, or dealing with ignorant people. Dealing with the aftermath of being bullied and ostracized my whole life.
I guess I'd say my biggest strengths are my determination and compassion that have been brought on by my struggles with TS. I love to read, write, sing, play guitar, and bowl.
I think other people should know how hard it really is to live with TS. Some people think it's not that difficult, but in reality, it is. TS can bring some good things, but it can also bring alot of bad things, too. We struggle with things that most people don't have to worry about, and it can be heartbreaking to have to deal with. The pain never really goes away, no matter how good you can become at hiding it and making clever excuses. But with that comes alot of strength, determination, and compassion. Always give someone with TS a chance. They just might surprise you."
Meet Elizabeth! Elizabeth's Bio for the Documentary!
Meet Elizabeth! She and many others who live with Tourette's Syndrome will be featured in our upcoming documentary.
"My name is Elizabeth Klein; I am 19 years old, and go to college at the University of Maryland in Baltimore County.
I was diagnosed with Tourette’s syndrome in 2004 but have had tics since I was a little sprout.
My tics like to cycle, and over the years I have had blinking, muscle clenching, shoulder shrugging, head bobbing, exhaling, breath holding, chirping, and other various tics.
The hardest part is when I’m in stressful classes and my tics spike – it’s loud, people sneak glances at me, and I get headaches from a few of my more troublesome tics.
Despite being in almost constant motion I am very good at crafting jewelry and figures out of paper, clay, wire, almost anything – most of my jewelry and holiday gifts are handmade. I’m also a very avid reader. I love to read and craft, and when I get really absorbed my tics tend to lessen in intensity.
One thing I would love for others to know about TS is that it is a part of me, like a large, very visible mole. I’ve had it since I was small and have learned to live with it. It bugs others more than it bugs me, and I’m usually not aware of it unless people bring it to my attention or I’ve had a particularly stressful day. Another thing others should know is that people with TS are all different – not one of us has exactly the same symptoms and tics and not all of us are affected the same way."
"My name is Elizabeth Klein; I am 19 years old, and go to college at the University of Maryland in Baltimore County.
I was diagnosed with Tourette’s syndrome in 2004 but have had tics since I was a little sprout.
My tics like to cycle, and over the years I have had blinking, muscle clenching, shoulder shrugging, head bobbing, exhaling, breath holding, chirping, and other various tics.
The hardest part is when I’m in stressful classes and my tics spike – it’s loud, people sneak glances at me, and I get headaches from a few of my more troublesome tics.
Despite being in almost constant motion I am very good at crafting jewelry and figures out of paper, clay, wire, almost anything – most of my jewelry and holiday gifts are handmade. I’m also a very avid reader. I love to read and craft, and when I get really absorbed my tics tend to lessen in intensity.
One thing I would love for others to know about TS is that it is a part of me, like a large, very visible mole. I’ve had it since I was small and have learned to live with it. It bugs others more than it bugs me, and I’m usually not aware of it unless people bring it to my attention or I’ve had a particularly stressful day. Another thing others should know is that people with TS are all different – not one of us has exactly the same symptoms and tics and not all of us are affected the same way."
Meet Grant! Grant's Bio for the Documentary!
Meet Grant! Grant and many others who live with Tourette's Syndrome will be featured in our upcoming documentary.
"My name is Grant Russell Jarboe and I am 10 years old. I live in a small town near Indianapolis, Indiana. I’m in the 5th grade and I love math the most. I love playing soccer and I’m on a travel team. Mostly I play defense.
I’m not sure how long I’ve had Tourette Syndrome but I do
"My name is Grant Russell Jarboe and I am 10 years old. I live in a small town near Indianapolis, Indiana. I’m in the 5th grade and I love math the most. I love playing soccer and I’m on a travel team. Mostly I play defense.
I’m not sure how long I’ve had Tourette Syndrome but I do
n’t remember a time when I didn’t have it. My mom says that I have had it since I was very little but wasn’t officially diagnosed until 2009.
I have lots of tics that I do all of the time but sometimes I have some that come and go. The tics that I do all the time are a head nod, some noises I make with my throat, a hand shake, a jump, nose wiggle, running my finger under my nose, grabbing my privates, and smelling my blankies when they are around. Sometimes I have different vocal noises. There is an order that my tics go when they come out but it depends on the situation that I am in.
The hardest part of living with TS for me is when I’m running and have a tic, it makes me stop and do it. I could do it on the way but I worry about landing wrong and getting hurt so I have to stop to let my tic go."
I am good at my position in soccer. I work very hard to defend the goal when I’m playing. One of my strengths during soccer is when I tic and it distracts the opponents. I don’t let my tics bother me or slow me down. They are who I am.
I want to bring awareness to help people that are made fun of because of their TS. Even though I’ve only had it happen once it made me realize that sometimes it happens to other people more often and I want to make people understand what TS is and that they can’t help it."
I have lots of tics that I do all of the time but sometimes I have some that come and go. The tics that I do all the time are a head nod, some noises I make with my throat, a hand shake, a jump, nose wiggle, running my finger under my nose, grabbing my privates, and smelling my blankies when they are around. Sometimes I have different vocal noises. There is an order that my tics go when they come out but it depends on the situation that I am in.
The hardest part of living with TS for me is when I’m running and have a tic, it makes me stop and do it. I could do it on the way but I worry about landing wrong and getting hurt so I have to stop to let my tic go."
I am good at my position in soccer. I work very hard to defend the goal when I’m playing. One of my strengths during soccer is when I tic and it distracts the opponents. I don’t let my tics bother me or slow me down. They are who I am.
I want to bring awareness to help people that are made fun of because of their TS. Even though I’ve only had it happen once it made me realize that sometimes it happens to other people more often and I want to make people understand what TS is and that they can’t help it."
Meet Brendon! Brendon's Bio for the Documentary!
Meet Brendon! Brendon and many others will be featured in our upcoming Tourette's Documentary.
"My name is Brendon. I'm 6yrs old and I am from Louisiana.
I was diagnosed with TS when I was 4. My tics include: head shaking, blinking, hand flapping, the need to stop while walking, and occasionally a few vocal tics.
The hardest part is my head shaking tic. When I can't stop shaking my head, it gives me a really bad headache.
I like to draw, play soccer, and do flips.
I want people to understand that I can't help my tics and that they bother me."
"My name is Brendon. I'm 6yrs old and I am from Louisiana.
I was diagnosed with TS when I was 4. My tics include: head shaking, blinking, hand flapping, the need to stop while walking, and occasionally a few vocal tics.
The hardest part is my head shaking tic. When I can't stop shaking my head, it gives me a really bad headache.
I like to draw, play soccer, and do flips.
I want people to understand that I can't help my tics and that they bother me."
Meet Jeffrey! Jeffrey's Bio for the Documentary!
Meet Jeffrey! Jeffery and many others will be featured in our upcoming Tourette's Documentary.
"Hello my name is Jeffrey Spaargaren. I am 12 years old. I live with my mom, dad, sister and uncle in Romeoville, Illinois. I am in middle school. I have been informing kids since 3rd grade about Tourette Syndrome.
I was dianosed with Tourettes at the age of 6. I have many tics, such as head jerking,
"Hello my name is Jeffrey Spaargaren. I am 12 years old. I live with my mom, dad, sister and uncle in Romeoville, Illinois. I am in middle school. I have been informing kids since 3rd grade about Tourette Syndrome.
I was dianosed with Tourettes at the age of 6. I have many tics, such as head jerking,
chest punching and completely freezing in the middle of a sentence, holding my breath, and squeezing my face muscles.
The hardest part about having Tourettes Syndrome is getting no sleep an then having to go to school, the less I sleep the more I act up in school. It makes it very hard to pay attention.
Since I was diagnosed with Tourettes Syndrome I personally think I have become braver and more edjucated. I like to play and wacth sports. Like basketball, baseball, hockey and more. I also like drawing. every time I draw I forget I ever had Tourettes.
The hardest part about having Tourettes Syndrome is getting no sleep an then having to go to school, the less I sleep the more I act up in school. It makes it very hard to pay attention.
Since I was diagnosed with Tourettes Syndrome I personally think I have become braver and more edjucated. I like to play and wacth sports. Like basketball, baseball, hockey and more. I also like drawing. every time I draw I forget I ever had Tourettes.
Meet Phillip! Phillip's Bio for the Documentary!
Meet Phillip! Phillip and many others will be featured in our upcoming Tourette's documentary!
"Hi my name is Phillip Muddiman and am 11years old in 6th grade.
I was diagnosed with TS when I was In 3rd grade.
My tics are blinking, throat clearing, tapping and hand movements.
It is hard to look at something without blinking and controlling tics. I often lose my concentration
When I am sad, stressed, or angry I like to write. I like to skateboard and hang out with my friends. I also love Taekwondo, I am a green belt and working to get my black belt someday
I wish people knew that I can not control my tics, and I can not help doing them. I have to do my tics"
"Hi my name is Phillip Muddiman and am 11years old in 6th grade.
I was diagnosed with TS when I was In 3rd grade.
My tics are blinking, throat clearing, tapping and hand movements.
It is hard to look at something without blinking and controlling tics. I often lose my concentration
When I am sad, stressed, or angry I like to write. I like to skateboard and hang out with my friends. I also love Taekwondo, I am a green belt and working to get my black belt someday
I wish people knew that I can not control my tics, and I can not help doing them. I have to do my tics"
Meet Cassandra! Cassandra's Bio for the Documentary!
Meet Cassandra! She and many others will be featured in our upcoming Tourette's documentary.
"I'm Cassandra, I'm 18, and I live in New York. I run the Tourette's Toucan tumblr!
I've had symptoms of TS since I was 5, but wasn't formally diagnosed until I was 9.
My most consistent tics are a head jerk, an arm jerk, a few scratching tics, and a vocal tic where I basically make a "P" sound. I've also had blinking tics, throat-clearing tics, and muscle-contraction tics.
The hardest thing about living with TS is definitely the pain that comes with it, and the fact that it prevents me from doing certain things like brushing my teeth as efficiently.
I'm a double major in Psychology and English at Stony Brook, which takes up most of my time. I love to read and write, and music is a huge part of my life.
The number one thing people need to know about TS is that it doesn't make us weird or bad. It's just another part of who we are, and we've all accepted that. :]"
"I'm Cassandra, I'm 18, and I live in New York. I run the Tourette's Toucan tumblr!
I've had symptoms of TS since I was 5, but wasn't formally diagnosed until I was 9.
My most consistent tics are a head jerk, an arm jerk, a few scratching tics, and a vocal tic where I basically make a "P" sound. I've also had blinking tics, throat-clearing tics, and muscle-contraction tics.
The hardest thing about living with TS is definitely the pain that comes with it, and the fact that it prevents me from doing certain things like brushing my teeth as efficiently.
I'm a double major in Psychology and English at Stony Brook, which takes up most of my time. I love to read and write, and music is a huge part of my life.
The number one thing people need to know about TS is that it doesn't make us weird or bad. It's just another part of who we are, and we've all accepted that. :]"
Meet Shawnna! Shawnna's Bio for the Documentary!
Meet Shawnna! She and many others will be featured in our upcoming Tourette's documentary!
"I'm Shawnna Rhey Moses & I'm From Boston MA.
I've had TS since I was around 5 years old & My Tics are Cracking every single bone In my body every second Its extremly Painful & Somedays I can't walk or move, My other Tics are , Blinking at lights for a long period of time & Noises with my throat & Deep bre
"I'm Shawnna Rhey Moses & I'm From Boston MA.
I've had TS since I was around 5 years old & My Tics are Cracking every single bone In my body every second Its extremly Painful & Somedays I can't walk or move, My other Tics are , Blinking at lights for a long period of time & Noises with my throat & Deep bre
aths out of my mouth & Nose , Making a noise with my tongue &+ Making a noise after I drink something..
The hardest part about living with TS for Me Is, Accepting It may never go away or get any better & The Pain I go through from my Tics.. It makes everything I do feel like Its Impossible & It gives Me a lot of Anxiety , Stress & Sometimes Depression.
I love to be outside, I love Animals , I love doing anything with My Husband , I love Acting , Writing , Reading, Fashion, Art, Working with Kids & Music &+ I love Disney Movies..
I believe People should know how hard It Is & That Its different for everyone & Just what People really go through & How Painful It Is, I believe there should be more Knowledge In general & More Support!"
The hardest part about living with TS for Me Is, Accepting It may never go away or get any better & The Pain I go through from my Tics.. It makes everything I do feel like Its Impossible & It gives Me a lot of Anxiety , Stress & Sometimes Depression.
I love to be outside, I love Animals , I love doing anything with My Husband , I love Acting , Writing , Reading, Fashion, Art, Working with Kids & Music &+ I love Disney Movies..
I believe People should know how hard It Is & That Its different for everyone & Just what People really go through & How Painful It Is, I believe there should be more Knowledge In general & More Support!"
Meet Colton! Colton's Bio for the Documentary!
Meet Colton! He will be featured in our upcoming Tourette's documentary.
"My name is Colton Semonasky. I am 10 years old.
I live in Leesburg, Florida.
"My name is Colton Semonasky. I am 10 years old.
I live in Leesburg, Florida.
I have had Tourette Syndrome for 1 1/2 years.
Some of my tics include yelling out No, shaking my head fast, and full upper body (sometimes full body) tics where my arms and face go stiff.
I feel the hardest part of living with TS is how everyone stares at me and going to school and to focus because I yell out a lot.
One of my strengths is making friends. I like to hunt, fish, and ride four wheelers.
I think other people should know that we can not help it that we tic and it is hard when people stare at you. It is hard to live with Tourettes.
Some of my tics include yelling out No, shaking my head fast, and full upper body (sometimes full body) tics where my arms and face go stiff.
I feel the hardest part of living with TS is how everyone stares at me and going to school and to focus because I yell out a lot.
One of my strengths is making friends. I like to hunt, fish, and ride four wheelers.
I think other people should know that we can not help it that we tic and it is hard when people stare at you. It is hard to live with Tourettes.
Meet Juliet! Juliet's Bio for the Documentary!
Meet Juliet! She and many others will be featured in our upcoming Tourette's documentary.
"I’m the lovely, beautiful and always bursting with fruit flavor, Juliet Michelle. And I live in Bethlehem, PA and... if you must know... I am 26
I started to have tics about 7 or 8 years old...so 19 years. Some of my tics are full body jerks, facial grimacing, blinking, scratching, head shaking, throat cl
"I’m the lovely, beautiful and always bursting with fruit flavor, Juliet Michelle. And I live in Bethlehem, PA and... if you must know... I am 26
I started to have tics about 7 or 8 years old...so 19 years. Some of my tics are full body jerks, facial grimacing, blinking, scratching, head shaking, throat cl
earing, sniffling, hiccuping, ear popping, ear scratching, shoulder jerking, arm/hand shaking... Echoing things I say... Echoing things other people say such as shrieking, whistling, chirping, bleeking, and hissing. Teeth chattering, full body shuddering and spinning are just a few. IF my body can do it... i probably tic there
The hardest part for me is having full blown, full body tics that look like seizures... or being triggered by something stupid like a screaming kid... or a whistle...
I’m a very talented wedding cake decorator, when the tics don’t get in the way... um... I love to play piano and im good at that too...Ive had lessons since I was 5...and I love having pets like my big oscar fish! Oh, and I'm very smart. I've got my Masters degree in the history of religon... and plan on going straight for my PH.D.
People should know that Tourette's is not the pretty little disorder that National and most doctors explain away. It's so much more than just throat clearing and eye blinking... and I'm not saying that to say that people with those tics are less important. they are very important and their expiriences are valuable for all of us to learn from...But, I come from the point of view of a TS patient who is severe, and that is how I speak.
It’s not as simple as “oh, you’ll age out of it” or… “it remits when you get into adulthood”. This can be a severe, lifelong problem for many people… and we get forgotten about. BUT, BUT BUT BUT… that doesn’t mean we’re any less capable. Talented… or anything else. It just means that we’re STRONGER, Strive HARDER, work SMARTER, and have learned to be much more adaptable to difficult situations because we have to work against something bigger than us on the inside. We’re resourceful, diligent and often times frustrated because we know we can do more but our bodies wont let us… but even with that. We don’t give up."
The hardest part for me is having full blown, full body tics that look like seizures... or being triggered by something stupid like a screaming kid... or a whistle...
I’m a very talented wedding cake decorator, when the tics don’t get in the way... um... I love to play piano and im good at that too...Ive had lessons since I was 5...and I love having pets like my big oscar fish! Oh, and I'm very smart. I've got my Masters degree in the history of religon... and plan on going straight for my PH.D.
People should know that Tourette's is not the pretty little disorder that National and most doctors explain away. It's so much more than just throat clearing and eye blinking... and I'm not saying that to say that people with those tics are less important. they are very important and their expiriences are valuable for all of us to learn from...But, I come from the point of view of a TS patient who is severe, and that is how I speak.
It’s not as simple as “oh, you’ll age out of it” or… “it remits when you get into adulthood”. This can be a severe, lifelong problem for many people… and we get forgotten about. BUT, BUT BUT BUT… that doesn’t mean we’re any less capable. Talented… or anything else. It just means that we’re STRONGER, Strive HARDER, work SMARTER, and have learned to be much more adaptable to difficult situations because we have to work against something bigger than us on the inside. We’re resourceful, diligent and often times frustrated because we know we can do more but our bodies wont let us… but even with that. We don’t give up."
Meet Zusil and Freida! Their Bios for the Documentary!
Meet Zusil! He and his sister Freida will be featured in our upcoming documentary!
My name is Zusil Eliezer, i'm 9 years old, and i'm from Penn Wynne, PA
"I've had Tourette's since I was 6. Some of my tics are quacking, calling people chicken, honking, evil laugh, loud scream, hand push, goose honk, nose pick,"beard" pic, and more.
The hardest part is that people don't believe I can get new tics.
I like to play lego, pokeman, and play star wars.
I want other people to know that I can get new tics at any time."
Meet Freida! She and her brother Zusil will be featured in our upcoming documentary!
My name is Freida Rochel Atkins, i'm six years old, and I live in Penn Wynne, PA.
"I've had Tourette's for one and a half years. Some of my tics are whawha, chacha, dancing tic, stretching tics, brushing hair tic. I have a lot more but those are some of mine.
The hardest part is when I do my eye touching tic.
I tell it like it is. I like reading, playing with my little sister, playing with my doll house, and doing ballet.
I want people to know that it's my tourettes, I can't help it."
My name is Zusil Eliezer, i'm 9 years old, and i'm from Penn Wynne, PA
"I've had Tourette's since I was 6. Some of my tics are quacking, calling people chicken, honking, evil laugh, loud scream, hand push, goose honk, nose pick,"beard" pic, and more.
The hardest part is that people don't believe I can get new tics.
I like to play lego, pokeman, and play star wars.
I want other people to know that I can get new tics at any time."
Meet Freida! She and her brother Zusil will be featured in our upcoming documentary!
My name is Freida Rochel Atkins, i'm six years old, and I live in Penn Wynne, PA.
"I've had Tourette's for one and a half years. Some of my tics are whawha, chacha, dancing tic, stretching tics, brushing hair tic. I have a lot more but those are some of mine.
The hardest part is when I do my eye touching tic.
I tell it like it is. I like reading, playing with my little sister, playing with my doll house, and doing ballet.
I want people to know that it's my tourettes, I can't help it."
Meet Adam! Adam's Bio for the Documentary!
Meet Adam! Adam and many others will be featured in our upcoming documentary!
"My name is Adam Burton Farris, i'm 24, and i'm from Hendersonville North Carolina.
I've had Tourette's siince age 6 and my tics are shaking my head, and grunting. I also have Tardive Disconisia.
I believe my (dis)ABILITIES are really Abilities! So I make every day as good as I can.. So I try not to have bad days.
My Strengths are having (dis)DISABILITIES which I call Abilities! Because god put me on this earth for a reason, a very good reason!
Tourette's is not a disability, if you know someone with TS and think they are weird are rude try to get to know them. You never know they could become a very close friend! Or even your significant other one day!"
"My name is Adam Burton Farris, i'm 24, and i'm from Hendersonville North Carolina.
I've had Tourette's siince age 6 and my tics are shaking my head, and grunting. I also have Tardive Disconisia.
I believe my (dis)ABILITIES are really Abilities! So I make every day as good as I can.. So I try not to have bad days.
My Strengths are having (dis)DISABILITIES which I call Abilities! Because god put me on this earth for a reason, a very good reason!
Tourette's is not a disability, if you know someone with TS and think they are weird are rude try to get to know them. You never know they could become a very close friend! Or even your significant other one day!"
Meet Jackie! Jackie's Bio for the Documentary!
Meet Jackie! She will be featured in our upcoming documentary!
"My name is Jackie and I am 20 years old and from VA.
I have had TS since I was in eighth grade but I wasn't diagnosed until I was 19. Some of my tics include neck stretching, eye rolling, sticking out my tongue, saying stop, please, no, and yelping.
The hardest thing about Tourette's is not having control over myself and constantly worrying about drawing attention to myself.
I love working with kids and helping people. I also love making music and doing crafts.
I want people to know that it isn't necessarily a bad thing. It is just something that makes us different. Everyone has struggles, ours are just a little different than most."
"My name is Jackie and I am 20 years old and from VA.
I have had TS since I was in eighth grade but I wasn't diagnosed until I was 19. Some of my tics include neck stretching, eye rolling, sticking out my tongue, saying stop, please, no, and yelping.
The hardest thing about Tourette's is not having control over myself and constantly worrying about drawing attention to myself.
I love working with kids and helping people. I also love making music and doing crafts.
I want people to know that it isn't necessarily a bad thing. It is just something that makes us different. Everyone has struggles, ours are just a little different than most."
Meet Holly! Holly's Bio for the Documentary!
Meet Holly! Holly will be featured in our upcoming documentary.
"Hey my name is Holly. I'm 16 and I live in Knoxville, Tennessee.
I have had tics since I was 12 but wasn't diagnosed until May of this year.
I have a wide variety of tics including squatting, jumping, barking, coprolalia, blurting out random words and head jerks and arm flailing too. There are just too many to count!
I would say the hardest part about having TS for me is that people judge before they even know me.
My favorite thing to do in the world is play saxophone. I've been in band for 6 years and I was drum major this year (the conductor of a marching band). I would die without it.
I think people should know that underneath people with Tourette's are still people and not a freak show. We do have feelings and I think people actually do forget that."
"Hey my name is Holly. I'm 16 and I live in Knoxville, Tennessee.
I have had tics since I was 12 but wasn't diagnosed until May of this year.
I have a wide variety of tics including squatting, jumping, barking, coprolalia, blurting out random words and head jerks and arm flailing too. There are just too many to count!
I would say the hardest part about having TS for me is that people judge before they even know me.
My favorite thing to do in the world is play saxophone. I've been in band for 6 years and I was drum major this year (the conductor of a marching band). I would die without it.
I think people should know that underneath people with Tourette's are still people and not a freak show. We do have feelings and I think people actually do forget that."
Meet Jayden! Jayden's Bio for the Documentary!
Meet Jayden! He will be featured in our upcoming documentary!
"Hi, my name is Jayden. I am 7 years old and I live in Kingman, AZ.
I just turned 6 when I started a shoulder shrugging tic that worried my mom. After some investigation and learning about TS, she realized I had other tics, such as throat clearing and eye blinking, previously shrugged off as quirks since about age 4. I wasn't officia
"Hi, my name is Jayden. I am 7 years old and I live in Kingman, AZ.
I just turned 6 when I started a shoulder shrugging tic that worried my mom. After some investigation and learning about TS, she realized I had other tics, such as throat clearing and eye blinking, previously shrugged off as quirks since about age 4. I wasn't officia
lly diagnosed until April of 2012.
Sometimes some of my tics can interfere with daily activities, which can be frustrating.
My parents and doctors think I'm really smart, even advanced. All I know is I love to read just about anything. I also enjoy drawing and building.
I think people should learn about TS so they know they shouldn't laugh at somebody when they're doing their tics, or call them names, like crazy."
Sometimes some of my tics can interfere with daily activities, which can be frustrating.
My parents and doctors think I'm really smart, even advanced. All I know is I love to read just about anything. I also enjoy drawing and building.
I think people should learn about TS so they know they shouldn't laugh at somebody when they're doing their tics, or call them names, like crazy."
Meet Brandon! Brandon's Bio for the Documentary!
Meet Brandon! He will be featured in our upcoming documentary!
My name is Brandon Zimmerman, i'm 14, and i'm from North English, Iowa.
I've had TS since I was 5. I have had lots of different tics, but my tics right now are: eye rolling,shoulder shrugginh, neck stretching, tummy tics and a funky fingers. We like to name them!!
The hardest part for me is when kids or adults make fun of me because of all of my tics.
I like computers, video games, legos and drawing
I want other people to know that we can't stop it, even though you tell me to over and over again.
Also this photo is a picture of me with Miss Iowa, Mariah Cary who also has TS and her platform is TS too!!"
My name is Brandon Zimmerman, i'm 14, and i'm from North English, Iowa.
I've had TS since I was 5. I have had lots of different tics, but my tics right now are: eye rolling,shoulder shrugginh, neck stretching, tummy tics and a funky fingers. We like to name them!!
The hardest part for me is when kids or adults make fun of me because of all of my tics.
I like computers, video games, legos and drawing
I want other people to know that we can't stop it, even though you tell me to over and over again.
Also this photo is a picture of me with Miss Iowa, Mariah Cary who also has TS and her platform is TS too!!"
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