Monday, May 13, 2013

News about the Tourette's Syndrome Documentary Project and More

Good and major news everyone! Logan and I will be releasing the long awaited Tourette's Syndrome Documentary Project around the end of this month in honor of Tourette's Syndrome awareness month! Along with the documentary project, Logan and I will also be releasing our website that the documentary project will be featured on. Basically the website is going to be a video database where people can find video clips and full length documentaries that are about disabilities, disorders, and other life challenges. Not only will these videos be providing knowledge, but they will also be empowering and the source of great support. These videos will let people with all sorts of different challenges that they are NOT alone. Of course since Logan and I both have TS, Tourette's Syndrome will be a special focus of many sections of the website so there will be many video resources for those of you in this group! I hope you all are as excited as I am! I can't wait to get all of your feedback on this project that Logan and I have spent so much time and effort to create for you guys. More information to come later this month 

1 comment:

  1. Dear Ruthie,

    I apologize in advance for leaving such a lengthy comment, but I couldn't find your personal contact information.

    Living with a disability is challenging, especially one as misunderstood and publicaly visible as Tourette’s. In her new fresh, funny and uplifting memoir WELCOME TO BISCUIT LAND: A Year in the Life of Touretteshero, foreword by comedian Steven Fry, Jessica Thom offers a rare, first-person glimpse into Tourette’s Syndrome.

    Squawking on the bus, shouting the world “biscuit” up to 16 times per minute, which is about 16,000 times per day, punching herself in the chest, and trying to soothe the subsequent public responses to her condition is Jess’s everyday reality. A diary-like memoir, WELCOME TO BISCUIT LAND presents short excerpts during the course of a year as Jess navigates a world made complex by her uncontrollable verbal and physical tics.

    In spite of her syndrome, Jess chooses to see herself as a Tourette’s hero, “changing the world one tic at a time.” In 2010, she set up Touretteshero, a community-based web site that seeks to challenge society’s misconceptions while promoting the humor and creativity of the syndrome.

    Jessica Thom is truly a unique and inspiring individual. I hope you’ll consider including her book in your site resource section. If you’d be interested in a copy of WELCOME TO BISCUIT LAND for possible review, speaking to Thom for a profile piece, or need any more information, please feel free to contact me at (312) 337-0747 ext. 227 or Check out more about the book here:

    I look forward to hearing from you.

    Shannon Frech