TS Awareness Month Project Filming Instructions

REMEMBER, when filming, if you are filming with a phone or tablet please turn it sideways so that when it is transferred to the computer it will take up the whole screen! Also try to film in an area with good lighting and with minimal background clutter. It's sometimes a good idea to film against a wall, sitting in a chair that's against a wall, or sitting at a clean table or on a couch with minimal clutter. Also be aware that if you are filming outside (which can be a very good backround!) that if there is wind , cars driving by, or a lawn mower going, the audio will not come though!

Uploading Instructions: Once you are done filming, upload the video(s) to youtube and click the box that says unlisted. Then send me the link to your videos! If you have specific uploading questions, feel free to ask me!

There are three ways you can help out! You can do one of these options, two of these options, or all three!

1. Answer the questions below in a video
2. Take a video of your tics or your child's tics

Questions For Kids: (In terms of lighting, background, closeness to the face your video should look something like this: https://vimeo.com/93571299. Film close up to the face, try to make the video as pretty and professional looking as possible!!! Look at the questions ahead of time and plan out a background/ place to film.) 

State your name, age and that you have Tourette Syndrome

How would you describe what Tourette's Syndrome is to someone who doesn't know much about it?

What would you say to another kid who was recently diagnosed with TS?

What are some bad things about having TS?

What are some good things about having TS?

How does having TS make you feel/ If you had to describe what it's like to have TS in one sentence how would you describe it?

Do you ever get bullied because of your TS?

Has something funny ever happened because of one of your tics?

What's something you've said in the past about having TS such as a quote or a statement? Or make up your own quote now! Say it in the video. (if you need to think on this one for a little while that's okay!) Some examples from some other kids are "when my tics first appeared they were very bad. I thought I was dying. My whole body hurt from the inside out" and  "My tics make my special, that's how I like to think of it"

Tell a story of something that happened because of your tics. It could be a funny story, a sad story, something that made you smile, or any other type of story that relates to your tics and something you have experienced as a result.

Do you have any associated conditons with your TS like ADHD, OCD, or anxiety? What is that like for you? What are some of the things you have to deal with because of that?

How do other people react to your tics?

What is it like for you to tic in public?

What is it like for you to tic in school?

What are some of your hobbies? What are you passionate about? What are some of your accomplishments? 

These are suggested questions! Try to answer them all, but feel free to skip over any, add in your own questions, or talk about whatever you like!

How does having TS make you feel/ If you had to describe what it's like to have TS in one sentence how would you describe it?

Are your friends understanding about your TS? Are your teachers? Are your other family members?

What's something you've said in the past about having TS such as a quote or a statement? Or make up your own quote now! Say it in the video. (if you need to think on this one for a little while that's okay!) Some examples from some other kids are "when my tics first appeared they were very bad. I thought I was dying. My whole body hurt from the inside out" and  "My tics make my special, that's how I like to think of it"

Tell a story of something that happened because of your tics. It could be a funny story, a sad story, something that made you smile, or any other type of story that relates to your tics and something you have experienced as a result.

How do other people react to your tics?

What is it like for you to tic in public? How do you deal with ticcing in public? 

Also if you are a girl, answer these questions: 

"What's it like being a girl and having TS?" 

"Do you think it's important to let others know that girls have TS too? Why?

Add in anything you think you should say about being a girl and having TS!

Questions for Teens/Adults (Try to make the video as pretty and professional looking as possible!!! It might be a good idea to look at the questions ahead of time and also plan out a background/ place to film ahead of time. Also try to film close up to the face. For a good example of what your video should look similar too click here: https://vimeo.com/93571299): 

Say your name, and that you have Tourette’s Syndrome

What was it like for you when you were first diagnosed with TS?

What are some of your tics?

Do you have any tics that hurt you? 

What does a tic feel like to you?

What do you want other people to know about having TS? 

 Do you have any associated conditions? If so, what are they?

  How do your associated conditions affect you?

How do you stay positive when you are having a difficult time in school or in general with your TS?

Have you had any negative reactions? What were they? 

How do you deal with negative reactions?

What is it like for you to tic in public? How do you deal with ticcing in public?

What was school like for you when you were a kid (elementary school, middle school, high school, college)?

What is the hardest part of having Tourette’s?

 What is the best part? 

What are some of your successes you have had?
 
What are some of your challenges you have had? 

What is your profession/job now?

What advice would you give to someone who was just diagnosed with TS?

Tell a story of when someone had a reaction that you did not expect 

Tell a story about a time when your TS caused a particularly funny, interesting, upsetting, or surprising situation.

What would you want other people who don’t have TS to know about having TS?

Anything else you want to say about having TS?

Also if you are a girl, answer these questions: 

"What's it like being a girl and having TS?" 

"Do you think it's important to let others know that girls have TS too? Why?

Add in anything you think you should say about being a girl and having TS!